Juvenile Systemic Sclerosis – Hamburg Centre for Pediatric Rheumatology

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Hamburg Centre for Pediatric Rheumatology: 53.577680, 10.052733

Alexeeva, Ekaterina MD, PhD, Dr. Med. Sci., Professor: 55.742793, 37.615401

Kostik, Mikhail: 59.934280, 30.335099

Sifuentes-Giraldo, W. Alberto: 40.416775, -3.703790

Eleftheriou, Despina MBBS, PhD: 51.507351, -0.127758

Kasapçopur, Ozgur MD: 41.008238, 28.978359

Torok, Kathryn: 40.466551, -79.953134

Katsicas, Maria: -37.201729, -59.841070

Battagliotti, Cristina Guadalupe: -31.585511, -60.723802

Sztajnbok, Flavio MD, PhD: -22.906847, -43.172896

Terreri, Maria Teresa R. A. Profa. Dra.: -23.550520, -46.633309

Nielsen, Susan Mary: 55.695981, 12.566608

Janarthanan, Mahesh MD: 13.082680, 80.270718

Harel, Liora MD Prof: 32.321458, 34.853196

Marrani, Edoardo: 43.809959, 11.250528

Stanevicha, Valda MD, PhD: 56.921984, 24.088066

Santos, Maria Jose MD PhD: 38.676524, -9.165105

Lehman, Thomas: 40.765023, -73.952560

Kallinich, Tilmann PD Dr: 52.526462, 13.376624

Nemcova, Dana: 50.075538, 14.437800

Smith, Vanessa: 51.054342, 3.717424

Anton, Jordi: 41.383691, 2.101361

Berntson, Lillemor: 59.505000, 17.382500

Horneff, Gerd: 50.775300, 7.189550

Costa Reis, Patrícia MD: 38.707800, -9.136590

Lazarevic, Dragana: 43.321500, 21.895700

Nuruzzaman, Farzana: 40.714300, -74.006000

Feldman, Brian MD: 43.654000, -79.387200

Sawhney, Sujata Dr: 28.651700, 77.221900

Schonenberg-Meinema, Dieneke MD: 52.374000, 4.889690

Appenzeller, Simone Prof. Dr: -22.905600, -47.060800

The Toronto Scleroderma Program: 43.654000, -79.387200

Khubchandani, Raju Dr: 18.938800, 72.835300

Vasquez-Canizares, Natalia: 40.889700, -73.863800

Cimaz, Rolando: 45.466800, 9.190500

Malcova, Hana MD, PhD: 48.216038, 16.378984

Kaiser, Daniela Dr. med.: 47.050500, 8.305470

Patwardhan, Anjali Prof: 34.000700, -81.034800

Aim of the study:

To learn about the evolvement of organ involvement and quality of life from patients with juvenile systemic sclerosis
To improve the care of juvenile systemic sclerosis patients worldwide

Inclusion criteria:

Patient diagnosed with juvenile systemic sclerosis
Age at inclusion younger than 18 years of age

Method:

Assessment of the organ involvement and quality of life the patients every 6 months with a standardized protocol

Benefits for participants:

All contributing authors will be coauthor on the publications
All contributing centers receive periodic updates of the data
Improvement of the quality of care in the participating centres

This project is supported by an unrestricted grant from „Joachim Herz Stiftung“

International Inceptions cohort for Juvenile Systemic Sclerosis (jSSc)