BEGIN:VCALENDAR VERSION:2.0 PRODID:-//wp-events-plugin.com//7.4.0.1//EN TZID:Europe/Berlin X-WR-TIMEZONE:Europe/Berlin BEGIN:VEVENT UID:10@juvenile-scleroderma.com DTSTART;TZID=Europe/Berlin:20251206T100000 DTEND;TZID=Europe/Berlin:20251206T180000 DTSTAMP:20250210T111950Z URL:https://www.juvenile-scleroderma.com/events/18th-hamburg-symposium-on- juvenile-sclerosis/ SUMMARY:18th Hamburg Symposium on Juvenile Sclerosis DESCRIPTION: \;\nHow do we define “progressive disease” in juvenile systemic sclerosis? Are there distinct trajectories?\n\nProgramme\n\n10.- 10.10\nIntroduction – Ivan Foeldvari\nChairman: Vanessa Smith and Ivan F oeldvari\n\nHow do we define “progressive disease” in systemic scleros is? Lessons from adult cohorts?\n\n10.10 – 10.30\nEvent-driven progressi on based on the data of the Royal Free cohort. Chris Denton\, Division of Medicine\, University College London\, London\, UK\n\n10.30.-10.50\nEvent- driven progression based on the data on the EUSTAR cohort. Francesco del G aldo\n\n10.50-11.10\nEvent-driven progression based on the data of the Aus tralian cohort. TBA\, Melbourne\, Australia\n\n11.10- 11.30\nHow is progre ssion best defined in SSc. John Pauling\n\n11.30.-12.00\nRoundtable - Ques tion &\; Answers\n\n12.-12.20\nCoffee break\n\nChairman: Chris Denton a nd Clarissa Pilkington\n\n \;\n\n12.20.- 12.40\nProposal for trajector ies of progressive disease in juvenile systemic sclerosis from the publish ed literature. Ivan Foeldvari\n\n12.40-13.00\nCharacteristics of patients with progressive disease in the juvenile systemic sclerosis inception coho rt looking at 6\, 12 and 24 months- Jens Klotsche /Ivan Foeldvari\n\n13.-1 3.20\nCharacteristics of patients with progressive disease at 6\, 12 and 2 4 months in the National Registry of Childhood onset systemic Sclerosis - Cassie Torok /Jon Li \n\n13.20- 13.40\nRoundtable - Question &\; Answer s\n\n13.40- 14.30\nLunch Break\n\n14.30 -18.00\n\nProposal of the working groups: \nHow do we define “progressive disease” in systemic sclerosis ? Are there known trajectories?\n\nReport of the working groups and associ ated talks: All speakers are presenting bullet points and key questions to the group at the end of their talk. Each talk can be up to 20 minutes and 10 minutes discussion\n\nChairman: Patricia Costa Reis and Maurizio Cutol o\n\n \;\n\n14.30-16.15\nProposal of the working groups:\n\n Cutaneou s involvement – Catherine Orteu\, Ivan Foeldvari\, Cassie Torok and Pia Moinzadeh\n Musculoskeletal Involvement –Suzanne Li and Jordi Anton\n Interstitial lung disease – Jon Li \; Cassie Torok\, Ivan Foeldvari and Bernd Hindrichs\n\n16.15- 16.30\nCoffee Break\n\nChairman Suzanne Li and J ohn Pauling\n\n \;\n\n16.30-18.15\nProposal of the working groups:\n\n Cardiac involvement and pulmonary hypertension–Eduardo Marrani\, Clari ssa Pilkington\, Peer Hauck\, \n Raynauds and vascular involvement – Cl are Pain\n Renal involvement - Patricia Costa Reis\n Gastrointestinal In volvement – Cassie Torok\n\n18.15-18.25\n\nClosing Remarks: Ivan Foeldva ri\n\nThe symposium is supported by an unrestricted founds by:\n\nPrincipa l Investigator: Ivan Foeldvari (Paediatric Rheumatologist\, Hamburger Zent rum für Kinder- und Jugendhreumatologie\, Hamburg\, Germany)\n\nModerator : Vanessa Smith\n\n \;\n\nPlanned Participants:\n\n Jordi Anton / Cla ra Giménez Roca\; (Pediatric Rheumatologist\; University Children´s Hosp ital\, Barcelona\, Spain\n Cosimo Bruni\, (Adult Rheumatologist\, Univers ity Zurich\, Switzerland)\n Mauricio Cutolo (Adult Rheumatologist\, Depar tment of Rheumatology University Genua\, Italy)\,\n Chris Denton (Adult R heumatologist\, Royal Free Hospital\, London\, UK)\,\n Ivan Foeldvari (Pe diatric Rheumatologist\, Hamburger Zentrum für Kinder- und Jugendrheumato logie)\,\n Kim Fligelstone (Patient Representative\, FESCA)\, \n Peer Ha uck (Pediatric Cardiologist\, Hamburg)\,\n Francesco del Galdo\, ( Adult Rheumatologist\, University Leeds \; UK)\n Ozgur Kasapcopur\, (Pediatric Rheumatologist\, Istanbul\, Turkey)\n Jens Klotsche\, (Biostatistician\, Berlin\, Germany)John Li (Pediatric Rheumatologist\, University Children ’s Hospital Pittsburgh\, USA)\, \n Eduardo Marrani (Pediatric Rheumatol ogist\, Florence\, Italy)\, \n Pia Moinzadeh (Department of Dermatology\, University Cologne\, Germany)\, Suzanne Li (Pediatric Rheumatologist\, Ha ckensack University\, New Yersey\, USA)\n Catherine Orteu (Dermatologist\ , UCLA\, London\, UK)\,\n Clare Pain (Pediatric Rheumatologist\, Liverpoo l UK) \n John Pauling (Adult Rheumatologist\, Bath\, UK)\n Clarissa Pilk ington\, (Pediatric Rheumatologist\, Great Ormond Street Hospital\, London \, UK)\, \n Patricia Costa Reiss (Pediatric Rheumatologist and Nephrolog ist\, Hospital de Santa Maria\, Lisbon\, Portugal)\, \n Laura Ross (Adult Rheumatologist Melbourne\, Australia)\n Vanessa Smith (Adult Rheumatolog ist) Department of Rheumatology\, Ghent University Hospital\, Ghent\, Belg ium)\;\n Linda Schraven (Patient Representative\, FESCA)\; \n Cassie Tor ok (Paediatric Rheumatologist\, University Children’s Hospital Pittsburg h\, USA)\n LOCATION:Schönklinikum Eilbek\, Auditorium Eilbek (house 7\, 4th floor)\, Dehnhaide 120\, Hamburg\, 22081\, Germany GEO:53.5781351;10.052862900000036 X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Dehnhaide 120\, Hamburg\, 2 2081\, Germany;X-APPLE-RADIUS=100;X-TITLE=Schönklinikum Eilbek\, Auditori um Eilbek (house 7\, 4th floor):geo:53.5781351,10.052862900000036 END:VEVENT BEGIN:VTIMEZONE TZID:Europe/Berlin X-LIC-LOCATION:Europe/Berlin BEGIN:STANDARD DTSTART:20251026T020000 TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET END:STANDARD END:VTIMEZONE END:VCALENDAR