Papers:
Differences sustained between diffuse and limited forms of juvenile systemic sclerosis in expanded international cohort.
April 2021; Arthritis Care & Research DOI: 10.1002/acr.24609
Under detection of interstitial lung disease in juvenile systemic sclerosis (jSSc)
November 2020; Arthritis Care and Research DOI: 10.1002/acr.24499
Are diffuse and limited juvenile systemic sclerosis different in clinical presentation? Clinical characteristics of a juvenile systemic sclerosis cohort
August 2018; Journal of Scleroderma and Related Disorders 4(2):239719831879049; DOI: 10.1177/2397198318790494
Abstracts:
2022:
P.123 How is pulmonary function assessed in juvenile systemic scleroderma patient? Do we have a good clinical standard? Results from the juvenile scleroderma inception cohort
March 2022; Conference: 7th Systemic Sclerosis World Congress March 10-12, 2022
P.122 Juvenile systemic sclerosis (jssc) patients with overlap characteristics do not have mild disease. Results from the jssc inception cohort
March 2022; Conference: 7th Systemic Sclerosis World Congress March 10-12, 2022
P.121 Male juvenile systemic sclerosis patients have more severe disease.
Results from the international juvenile scleroderma inception cohort
March 2022; Conference: 7th Systemic Sclerosis World Congress March 10-12, 2022
P.120 Patients with juvenile systemic sclerosis have a distinct pattern of organ involvement. Results from the juvenile systemic sclerosis inception cohort
March 2022; Conference: 7th Systemic Sclerosis World Congress March 10-12, 2022
2021:
Male Juvenile Systemic Sclerosis Patients Have More Severe Disease: Results from the International Juvenile Scleroderma Inception Cohort
November 2021; Conference: ACR Convergence 2021
Patients with Juvenile Systemic Sclerosis Have a Distinct Pattern of Organ Involvement: Results from the Juvenile Systemic Sclerosis Inception Cohort
November 2021; Conference: ACR Convergence 2021
P273 Patients with juvenile systemic sclerosis have a distinct pattern of organ involvement. Results from the juvenile systemic sclerosis inception cohort. www.juvenilescleroderma.com
September 2021; Conference: 27th European Paediatric Rheumatology Congress (PReS 2021)
P271 Male juvenile systemic sclerosis patients have more severe disease: results from the international juvenile scleroderma inception cohort. www.juvenile-scleroderma.com
September 2021; Conference: 27th European Paediatric Rheumatology Congress (PReS 2021)
POS1304 Juvenile systemic sclerosis (jssc) patients with overlap characteristics do not have mild disease. Results from the jssc inception cohort. www.juvenilescleroderma.com
June 2021; Annals of the Rheumatic Diseases; 80(Suppl 1):934.1-934
POS0079 Patients with juvenile systemic sclerosis have a distinct pattern of organ involvement. Results from the juvenile systemic sclerosis inception cohort. www.juvenile-scleroderma.com
June 2021; Annals of the Rheumatic Diseases; 80(Suppl 1):247.2-247
2020:
Under Detection of Interstitial Lung Disease in Juvenile Systemic Sclerosis (jSSc) Utilizing Pulmonary Function Tests. Results from the Juvenile Scleroderma Inception Cohort
November 2020; Conference: ACR Convergence 2020
Under detection of interstitial lung disease in juvenile systemic sclerosis (jSSc)
November 2020; Arthritis Care and Research DOI: 10.1002/acr.24499
FRI0454 Under detection of interstitial lung disease in juvenile systemic sclerosis (jssc) utilizing pulmonary function tests. Results from the juvenile scleroderma inception cohort
June 2020; Annals of the Rheumatic Diseases 79(Suppl 1):824.1-824
THU0499 Is there a different presentation of juvenile systemic diffuse and limited subset? Data from the juvenile scleroderma inception cohort.
June 2020; Annals of the Rheumatic Diseases 79(Suppl 1):487-488
SAT0500 How the adult criss works in pediatric jssc patients – Results from the juvenile scleroderma inception cohort
June 2020; Annals of the Rheumatic Diseases 79(Suppl 1):1206.2-1206
FRI0466 No disease progression after 36 months follow up in the juvenile systemic scleroderma inception cohort
June 2020; Annals of the Rheumatic Diseases 79(Suppl 1):830.1-831; DOI:
P.346 Is the presentation and severity different of the juvenile diffuse and limited subtype systemic sclerosis? Results of juvenile scleroderma inception cohort
May 2020; Conference: 6th Systemic Sclerosis World Congress July 12-14, 2020
P.344 Under detection of interstitial lung disease in juvenile systemic sclerosis (jssc) utilizing pulmonary function tests. Results from the juvenile scleroderma inception cohort
May 2020; Conference: 6th Systemic Sclerosis World Congress July 12-14, 2020
P.345 How the adult CRISS works in pediatric jssc patients – Results from the juvenile scleroderma inception cohort
May 2020; Conference: 6th Systemic Sclerosis World Congress July 12-14, 2020
CO.26 Validation of disease activity measures in patients with jssc – Results from the jssc inception cohort
May 2020; Conference: 6th Systemic Sclerosis World Congress July 12-14, 2020
2019:
Under Detection of Interstitial Lung Disease in Juvenile Systemic Sclerosis (jSSc) Utilizing Pulmonary Function Tests: Results from the Juvenile Scleroderma Inception Cohort
November 2019; 2019 ACR/ARP Annual Meeting
Is the Presentation and Severity Different of the Juvenile Diffuse and Limited Subtype Systemic Sclerosis? Results of Juvenile Scleroderma Inception Cohort
November 2019; 2019 ACR/ARP Annual Meeting
SAT0478 After 24 months observation period the patients related outcomes improve significantly in the juvenile scleroderma inceptions cohort.
www.juvenile-scleroderma.com
June 2019; Annals of the Rheumatic Diseases 78(Suppl 2):1327-1327
AB0967 Is there a difference in presentation of female and male patients with juvenile systemic scleroderma. An update from the juvenile systemic scleroderma inception cohort.
www.juvenile-scleroderma.com
June 2019; Annals of the Rheumatic Diseases 78(Suppl 2):1949-1950.
SAT0479 Update from the juvenile scleroderma inception cohort.
www.juvenile-scleroderma.com
May 2019; Annals of the Rheumatic Diseases 78(Suppl 2):1720
2018:
Update from the Juvenile Scleroderma Inception Cohort
October 2018; Arthritis and Rheumatology 70(59):1557-8
THU0578 Patients and physician related outcomes improve significantly over 12 months follow up in patients with juvenile systemic sclerosis. results from the Juvenile Scleroderma Inception Cohort.
www.juvenile-scleroderma.com
June 2018; Annals of the Rheumatic Diseases 77((Suppl 2)):490
THU0577 Do raynaud phenomenon negative juvenile systemic scleroderma patients have a different pattern of organ involvement as raynaud phenomenon positive patients?
June 2018; Annals of the Rheumatic Diseases 77(Suppl 2):490.1-490
2017:
Are Patients with Overlap Features Different from Patients without? Results from the Juvenile Systemic Scleroderma Cohort
www.juvenile-scleroderma.com
September 2017; Arthritis & Rheumatology 69(suppl 10)
Performance of Juvenile Scleroderma Classification Criteria for Juvenile Systemic Sclerosis. Results from the Jssc Inception Cohort
September 2017, Arthritis & Rheumatology 69(suppl 10)
Male Patients Have a More Severe Course As Female Patients with Diffuse Juvenile Systemic Scleroderma? Results from the Juvenile Scleroderma Inception Cohort
ww.juvenile-scleroderma.com
September 2017, Arthritis & Rheumatology 69(suppl 10):2017
AB0957 Is there a difference in the clinical presentation of juvenile systemic scleroderma patients according the age of onset: results from the juvenile scleroderma inception cohort
www.juvenile-scleroderma.com
Article in Annals of the rheumatic diseases 76(Suppl 2):1389-90 · June 2017
2016:
Update on the Juvenile Systemic Sclerosis Inception Cohort Project. Characteristics of the First 80 Patients at First Assessment
Article in Arthritis & Rheumatology 68(Suppl 10) · November 2016
Is There a Difference in the Presentation of Diffuse and Limited Subtype in Childhood? Results from the Juvenile Scleroderma Inception Cohort
Article in Arthritis & Rheumatology 68(Suppl 10) · November 2016
Medication Use in the Juvenile Systemic Sclerosis Inception Cohort. Are There Differences in the Diffuse and Limited Subset Patients?
Article in Arthritis & Rheumatology 68(Suppl 10) · November 2016
SAT0257 Update on The Juvenile Systemic Sclerosis Inception Cohort Project. Characteristics of The First 74 Patients at First Assessment
Article · June 2016
DOI: 10.1136/annrheumdis-2016-eular.2636
THU0230 Is There A Difference in The Presentation of Male and Female Patients with Juvenile Systemic Sclerosis? Results from The Juvenile Scleroderma Inception Cohort
Article · June 2016
DOI: 10.1136/annrheumdis-2016-eular.2700
2015:
Is There a Difference in the Presentation of Diffuse and Limited Subtype of Juvenile Systemic Sclerosis in Childhood? Results from the Juvenile Scleroderma Inception Cohort
www.juvenile-scleroderma.com
Article in Arthritis & Rheumatology 67(S10) · November 2015
Performance of the Adult Systemic Sclerosis Classification in Juvenile Systemic Sclerosis Patients. Results from the Juvenile Systemic Sclerosis Inception Cohorte
www.juvenile-scleroderma.com
Article in Arthritis & Rheumatology 67(S10) · November 2015
Update on the Juvenile Systemic Sclerosis Inception Cohort Project. Characteristics of the First 50 Patients at First Assessment.
www.juvenile-scleroderma.com
Article in Arthritis & Rheumatology 67(S10) · November 2015
THU0511 Update on the Juvenile Systemic Sclerosis Inception Cohort.
www.juvenile-scleroderma.com
Article in Annals of the Rheumatic Diseases 74(Suppl2):385 · June 2015
OP0306 Is there a Difference in the Presentation of Diffuse and Limited Subtype of Juvenile Systemic Sclerois in Childhood? Results from the Juvenile Scleroderma Inception Cohorte.
www.juvenile-scleroderma.com
Article in Annals of the Rheumatic Diseases 74(Suppl2):189 · June 2015