International Inceptions cohort for Juvenile Systemic Sclerosis (jSSc)

Aim of the study:

  • To learn about the evolvement of organ involvement and quality of life from patients with juvenile systemic sclerosis
  • To improve the care of juvenile systemic sclerosis patients worldwide

Inclusion criteria:

  • Patient diagnosed with juvenile systemic sclerosis
  • Age at inclusion younger than 18 years of age


  • Assessment of the organ involvement and quality of life the patients every 6 months with a standardized protocol

Benefits for participants:

This project is supported by an unrestricted grant from „Joachim Herz Stiftung

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