Aim of the study:

• To learn about the evolvement of organ involvement and quality of life from patients with juvenile systemic sclerosis
• To improve the care of juvenile systemic sclerosis patients worldwide

Inclusion criteria:

• Patient diagnosed with juvenile systemic sclerosis
• Age at inclusion younger than 18 years of age

Method:

• Assessment of the organ involvement and quality of life the patients every 6 months with a standardized protocol

Benefits for participants:

• All contributing authors will be coauthor on the publications
• All contributing centers receive periodic updates of the data
• Improvement of the quality of care in the participating centres

This project is supported by an unrestricted grant from „Joachim Herz Stiftung“