International Inceptions cohort for Juvenile Systemic Sclerosis (jSSc)

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Hamburg Centre for Pediatric Rheumatology: 53.577680, 10.052733
Alexeeva, Ekaterina MD, PhD, Dr. Med. Sci., Professor: 55.742793, 37.615401
Kostik, Mikhail: 59.934280, 30.335099
Sifuentes-Giraldo, W. Alberto: 40.416775, -3.703790
Eleftheriou, Despina MBBS, PhD: 51.507351, -0.127758
Kasapçopur, Ozgur MD: 41.008238, 28.978359
Torok, Kathryn: 40.466551, -79.953134
Katsicas, Maria: -37.201729, -59.841070
Battagliotti, Cristina Guadalupe: -31.585511, -60.723802
Sztajnbok, Flavio MD, PhD: -22.906847, -43.172896
Terreri, Maria Teresa R. A. Profa. Dra.: -23.550520, -46.633309
Nielsen, Susan Mary: 55.695981, 12.566608
Janarthanan, Mahesh MD: 13.082680, 80.270718
Harel, Liora MD Prof: 32.321458, 34.853196
Marrani, Edoardo: 43.809959, 11.250528
Stanevicha, Valda MD, PhD: 56.921984, 24.088066
Santos, Maria Jose MD PhD: 38.676524, -9.165105
Lehman, Thomas: 40.765023, -73.952560
Kallinich, Tilmann PD Dr: 52.526462, 13.376624
Nemcova, Dana: 50.075538, 14.437800
Smith, Vanessa: 51.054342, 3.717424
Anton, Jordi: 41.383691, 2.101361
Berntson, Lillemor: 59.505000, 17.382500
Horneff, Gerd: 50.775300, 7.189550
Costa Reis, Patrícia MD: 38.707800, -9.136590
Lazarevic, Dragana: 43.321500, 21.895700
Nuruzzaman, Farzana: 40.714300, -74.006000
Feldman, Brian MD: 43.654000, -79.387200
Sawhney, Sujata Dr: 28.651700, 77.221900

Aim of the study:

  • To learn about the evolvement of organ involvement and quality of life from patients with juvenile systemic sclerosis
  • To improve the care of juvenile systemic sclerosis patients worldwide

Inclusion criteria:

  • Patient diagnosed with juvenile systemic sclerosis
  • Age at inclusion younger than 18 years of age

Method:

  • Assessment of the organ involvement and quality of life the patients every 6 months with a standardized protocol

Benefits for participants:


This project is supported by an unrestricted grant from „Joachim Herz Stiftung

Logo Joachim Herz Stiftung